National
(317) 925-9399
(800) 677-6442
(317) 925-9398 (FAX)
Email: NAMI-IN@nami.org
Website: www.namiindiana.org
Disabling
Conditions Served: Mental illnesses
Users
Served: Adults and children
Services
Available:
• Support
• Education
• Advocacy
Resources
Available:
• Illness Like Any Other (an
overview of mental illness)
• Depressive
Disorders in Children and Adolescents
• Seeking
Answers...Getting Help: Facing Concerns About Your
Child’s Mental Health
• Understanding
Bipolar Disorder: What You Need to Know About This Medical Illness
National Amputation Foundation
40 Church St.
Malverne, NY 11565
(516) 887-3600
(516) 887-3667 (FAX)
Email: AMPS76@aol.com
Website: www.nationalamputation.org
Disabling Conditions Served: Amputations
Users Served:
Amputees
Services Provided:
• Donated medical equipment giveaway program to those in need (items
must be picked up at office)
• Social activities such as bingo held in veterans’ hospitals
• Liaison with outside groups—list of support groups
• “Amp to Amp” program
Resources Available:
• Psychological Aspects of Amputation booklet
• Things to Know About Artificial Limbs booklet
• Various other publications
National Association of the Deaf
(301) 587-1788
(301) 587-1789 (TTY)
(301) 587-1791 (FAX)
Website: www.nad.org
Users Served:
Deaf, hard of hearing, and hearing adults; family members, colleagues, and
other interested people, including professionals and service providers
Services Provided:
• Biennial national conferences
• Described and captioned media programs
• Education policy and program development center
• Government affairs interventions
• Information and outreach
• Junior NAD
• Law center
• Miss Deaf America program
• Youth leadership camp
Resources Available:
• NADmag a bimonthly member magazine
• Books and other informational material
(763) 553-0020
(763) 553-0167
(FAX)
Email: naf@ataxia.org
Website: www.ataxia.org
Disabling
Conditions Served: Ataxia
Users
Served: Individuals who have ataxia,
and their families
Services
Provided:
• Location of persons and families with ataxia
• Development and encouragement of ongoing
patient communication
• Assistance with social and clinical needs
• Promotion of public and medical awareness
• Funding and coordination of medical research
Resources
Available:
• Generations bulletin
• Hereditary Ataxia pamphlet
• Various other publications
National Attention Deficit Disorder
Association
Wilmington, DE 19803
(800) 939-1019 (Phone/FAX)
Email: info@add.org
Website: www.add.org
Conditions
Served: Attention deficit disorder
(ADD)
Users
Served: Individuals with ADD and
others who care for and love them
Services
Provided:
• Education
• Research
• Public advocacy
• Annual conference
• Local support groups (see Website for list)
Resources
Available:
• Books
• Focus quarterly
newsletter
• Internet resources
• Tapes
National Braille Association, Inc.
95 Allens Creek Rd., Bldg. 1, Suite 202
Rochester, NY 14618
(585) 427-8260
(585) 427-0263(FAX)
Email: NBAOffice@nationalbraille.org
Website: www.nationalbraille.org
Disabling Conditions Served: Visual impairments
Users Served: Braille readers and transcribers
who prepare reading materials for the blind
Services Provided:
• Duplication of braille materials from a collection of textbooks, foreign
language, mathematics, music, and general interest items (there is a fee for
these services)
• Braille
transcription of educational, vocational, and recreational reading matter
• Continuing
education seminars and workshops for experienced braille
transcribers, tactile illustrators, and production workers
Resources Available:
• Catalogs of braille collection in regular print and braille
($5.00 each)
• NBA Bulletin issued quarterly
• Publications
and guidelines for preparing braille, tape, and large
print materials
National Catholic Partnership on
Disability (NCPD)
(202) 529-2933
(202) 529-2934 (TTY)
(202) 529-4678 (FAX)
Email: ncpd@ncpd.org
Website: www.ncpd.org
Disabling Conditions Served: All disabilities
Users Served: All seeking ministry resources and information on people with disabilities in the Catholic Church
Services Provided:
• Promoting access and meaningful inclusion of
those with disabilities and their families in the ministries, celebrations, and
obligations of their faith
National Center on Accessibility
(812) 856-4422 (Voice)
(812) 856-4421 (TTY)
(812) 856-4480 (FAX)
Email: nca@indiana.edu
Website: www.ncaonline.org
Disabling Conditions Served: All disabilities
Users Served:
People with disabilities in recreation, parks, and tourism
Services Provided:
• Technical assistance via phone or email
• Training and educational programs
• Educational programs for organizations that are
designing their leisure areas and programs for accessibility
• Resource articles and distance learning via web
• Research
Resources Available:
• Brochures
• Quarterly newsletter
National Center on Physical Activity and Disability
University of Illinois at Chicago
1640 W. Roosevelt Rd., Suite 711
(800) 900-8086 (Voice/TTY)
(312) 355-4058 (FAX)
Email:
Website: www.ncpad.org
Disabling Conditions Served: All disabilities
Resources
Available:
• AIMFREE accessibility tool
• Exercise videos for those with a wide variety of disabilities
• Discover camp booklet
• Discover leisture booklet
• Directories with searchable listings of accessible programs and organizations
• Webshop
• MyNCPAD personalized tools for physical activity goal-keeping
• Monthly Newsletter
(202) 479-1200
(202) 479-6674
(TDD)
(202) 479-0735
(FAX)
Website: www.ncoa.org
Disabling
Conditions Served: The aging population,
including aging individuals with disabilities
Services Provided:
• Annual conferences
• Advocacy
• Research support
• Workforce development
• Family
Friends volunteer network
• RespectAbility program
• Senior Center National Accreditation Program
Resources
Available:
• BenefitsCheckUp online medical benefits search program
• Long Term
Care Counselor Web-based decision-making tool
• Current
Literature on Aging bibliography with prices included
• Innovations quarterly journal
• NCOA Week newsbrief
• Vital Aging
Report newsletter
• Specialized
publications for members and professionals in the aging-field and general
interest publications for seniors. Both available for purchase online or by phone.
• Free downloads
of research reports
1825 Connecticut Ave., NW, Suite 700
Washington, DC
20013-1492
(800) 695-0285
(Voice/TTY)
(202) 884-8200
(Voice/TTY)
Email: nichcy@aed.org
Website: www.nichcy.org
Disabling
Conditions Served: All disabilities
Users
Served: Focus on information related to
children from birth until they exit high school
Services
Provided:
• Information,
resources, and referral
• Technical
assistance
Resources
Available:
• Disability fact
sheets
• Publications
specifically for parents
• State specific information
• Information on IDEA, the nation's special eduaction law
• Materials in
Spanish
National Down Syndrome Society
666 Broadway 8th Floor
(212) 460-9330
(800) 221-4602
Email: info@ndss.org
Website: www.ndss.org
Disabling Conditions Served: Down syndrome
Users Served:
Individuals with Down syndrome, family members, and professionals
Services Provided:
• Affiliate program of parent support groups
• Information and referral
• Advocacy and public awareness
Resources Available:
• A Promising Future Together: A Guide for New and Expectant Parents
• Other educational
brochures and booklets on Down syndrome
• Everyone Counts – inclusion curriculum
National Family Caregivers
Association
(301) 942-6430
(800) 896-3650
(301) 942-2302 (FAX)
Email: info@thefamilycaregiver.org
Website: www.thefamilycaregiver.org
Disabling Conditions Served: All disabilities
Users Served: Family
caregivers
Services Provided:
• Education
• Support
• Empowerment
• Advocacy
Resources Available:
• Love,
Honor & Value: A Family Caregiver Speaks Out, by
Suzanne Mintz, NFCA’s
President and cofounder
• Brochures,
bookmarks, and pamphlets available for purchase
• Take
Care newsletter
• Online
caregiver resource page, including answers to frequently asked questions,
Website links, and contact information for caregiver and caregiver-related
organizations
Membership to the National Family Caregivers
Association is free to all family caregivers. Membership entitles individuals to receive
brochures and bookmarks, as well as a quarterly newsletter.
National Kidney Foundation of
(317) 722-5640
(800) 382-9971
(317) 722-5650
(FAX)
Email: nkfi@kidneyindiana.org
Website: www.kidneyindiana.org
Disabling
Conditions Served: Diseases of the
kidney and urinary tract
Users
Served: Individuals who have diseases
of the kidney and urinary tract
Services
Provided:
• Organ donor program
• Counseling and referral
• Emergency funding for patient needs
• Prescription discount program
• Health planning
• Medical alert identification tags
• Patient advocacy
• Youth camps
• Public and professional education
Resources
Available:
• High Blood Pressure and Your Kidneys pamphlet
• NKFI Programs and Services brochure
• Various other free pamphlets, publications, and
films
3500 DePauw Boulevard, Suite 1040
Indianapolis, IN 46268
(317) 870-2500
(800)344-4867
(317) 870-2520 (FAX)
Email: Indiana@nmss.org
Website: www.nationalmssociety.org/ini
Disabling Conditions Served: Multiple sclerosis
Users Served:
Individuals with multiple sclerosis, their families, employers, and health
professionals
Services Provided:
• Referrals, information, and counseling
• Financial assistance programs
• Statewide network of self-help groups
• Advocacy
Resources Available:
• MS Connection quarterly newsletter
• Momentum quarterly magazine
• Various brochures, books, videos, DVD’s and CD’s
Local Self-Help Group Locations:
See Website for listing of more than
30 groups.
The National Neurofibromatosis
Foundation, Inc.
New York, NY 10005
(212) 344-6633
(800) 323-7938 (Toll-free)
(212) 747-0004 (FAX)
Website: www.ctf.org
Disabling Conditions Served: Neurofibromatosis
Users Served:
Individuals with neurofibromatosis and their families
Services Provided:
• Youth summer camps
• Referral to NF clinics
• Online bulletin board and chat room
Resources Available:
• Newsletters, both national and international
• Questions and Answers about Neurofibromatosis brochure
• Online resources including information about NF, a listing of
activities by state, and Web links to other NF resources
National Organization for Rare
Disorders (NORD)
(203) 744-0100
(800) 999-NORD
(6673) (Voice mail only)
(203) 797-9590
(TDD)
(203) 798-2291
(FAX)
Email: orphan@rarediseases.org
Website: www.rarediseases.org
Disabling
Conditions Served: All rare disorders
Users
Served: Individuals who have rare
disorders or “orphan diseases”
Services
Provided:
• Organizational and rare disease databases
• Education of the public and professionals
• Research support
• Conferences
• Networking
• Medication assistance program
Resources
Available:
• Orphan Disease Update newsletter
• NORD Resource Guide
• e-mail News Blasts
• Free booklets for physicians and other medical
professionals
• Various articles on rare diseases
• Library of Website links to related programs
and services
National Organization on Disability
(NOD)
(202) 293-5960
(202) 506-1968
(FAX)
Email: info@nod.org
Website: www.nod.org
Disabling
Conditions Served: All disabilities
Users Served: Persons with disabilities
Services
Provided:
• Community
Partnership Program – disabled persons’ network
• Public
awareness of disability issues and needs
Resources
Available:
• NOD brochure
• How to
Organize a Local Community Program
• Community
Partnership Program description
• e-newsletter
• Community
Partnership Awards booklet
• Media
Tips article on how to gain media
attention
• Capitol
News update on disability legislation
• Initiatives newsletter on business and disability
• Disabled
Citizens at the Polls: A Guide for Election Officials manual
• Assisting
Disabled Citizens at the Polls voter
card for poll workers
• Emergency
Preparedness Initiative guide
(305) 243-6666
(800) 327-4545
(305) 243-6073
(FAX)
Email: contact@parkinson.org
Website: www.parkinson.org
Disabling
Conditions Served: Parkinson’s
Disease
Users
Served: Parkinson’s
Disease patients and their
families
Services
Provided:
• Network
of NPF centers, chapters, and support groups
• Grant
programs
• Allied
Team Training (Parkinson training for allied healthcare professionals)
• Local
support groups
Resources
Available:
• Free
print publications available for download in both Spanish and English
• The
Parkinson Report magazine
• Books
• Parkinson’s
Disease medical alert cards
• All
resources may be ordered online
National Rehabilitation Association
633 S.
Washington St.
Alexandria, VA
22314-4193
(703) 836-0850
(703) 836-0849
(TDD)
(703) 836-0848
(FAX)
Email: info@nationalrehab.org
Website: www.nationalrehab.org
Disabling
Conditions Served: All disabilities
Users
Served: Persons with disabilities,
professionals, and parents
Programs
Provided:
• Job Placement
Division (JPD)
• National
Association of Rehabilitation Support Staff (NARSS)
• National
Association for Rehabilitation Leadership (NARL)
• National
Rehabilitation Counseling Association (NRCA)
• Vocational
Evaluation & Work Adjustment Association (VEWAA)
• National
Association for Independent Living (NAIL)
• National
Association of Service Providers In Private Rehab (NASPPR)
• National
Association of Multicultural Rehabilitation Concerns (NAMRC)
Services
Provided:
• Promotion of disability
awareness for the general public and professionals
• Annual national
convention and governmental affairs seminar
• State,
regional, and division conferences
Resources
Available:
• Journal of
Rehabilitation
• Contemporary
Rehab NRA newsletter
(301) 459-5900
(301) 459-5984 (TTY)
(800) 346-2742 (Toll-free)
(301) 458-4263 (FAX)
Email: naricinfo@heitechservices.com
Website: www.naric.com
Disabling Conditions Served: All disabilities
Users Served:
Consumers, researchers, family members, health professionals, educators, rehabilitation
counselors, students, librarians, and administrators
Services Provided:
• Reference, research, and referral
• Aid in clarifying information needs
• Resource library
• Access to REHABDATA and other databases
• Copies of materials in NARIC’s
collection (five cents per page, $5 USD minimum)
Resources Available:
• REHABDATA Thesaurus ($25.00)
• Reports and papers (five cents per page, $5 USD
minimum)
• NIDRR Program Directory ($5.00)
• Information sheets (free)
National Spinal Cord Injury Association
(301) 214-4006
(800) 962-9629
(Toll-free help-line)
(866) 387-2196 (FAX)
Email: info@spinalcord.org
Website: www.spinalcord.org
Disabling
Conditions Served: Spinal cord
injuries
Users
Served: Individuals with spinal cord
injuries and their families
Services
Provided:
• Peer
support
• Advocacy
• Annual
conferences
Resources
Available:
• SCI
Life quarterly newspaper
9707 E. Easter Ln., Suite B
Centennial, CO
80112
(303) 649-9299
(800) 787-6537
Email: info@stroke.org
Website: www.stroke.org
Disabling
Conditions Served: Disabilities
related to stroke
Users
Served: Stroke survivors and their
families, physical, occupational and speech therapists, professionals, and
rehabilitation centers
Services
Provided:
• Information and
referral
• Advocacy
• Development of
workshops
• Help in
starting stroke clubs and support groups
• Promotion of
research
Resources Available:
• Be Stroke Smart newsletter
• Other
publications and price lists upon request
The National Tay-Sachs
& Allied Diseases Association, Inc.
(800) 90-NTSAD
(617) 277-0134
(FAX)
Email: Info@ntsad.org
Website: www.ntsad.org
Disabling Conditions Served: Tay-Sachs, Canavan Disease, and
allied disorders which include all the lysosomal
storage diseases and leukodystrophies
Users Served: Individuals and families affected by Tay-Sachs, Canavan, and related
allied diseases
Services Provided:
• Peer Support Group – consists of parents, extended family, family
in-spirit, as well as affected adults, their families, and caregivers
• Other support groups
• Referrals
• Advocacy services
• Scientific advisory committee
• Tay-Sachs carrier screening information
• Adult Tay-Sachs Carrier Testing Laboratory
quality control program
• Educational programs
• Prevention services
• Research
Resources Available:
• What Every Family Should Know booklet
• What is Tay-Sachs Disease?
• Home care manual
New Horizons Rehabilitation, Inc.
PO Box 98
237 Six Pine Ranch Rd.
Batesville, IN 47006
(812) 934-4528 (Voice/TDD)
(812) 934-2522 (FAX)
Email: mdausch@newhorizons-rehab.org
Website: www.newhorizons-rehab.org
Disabling Conditions Served: All disabilities
Users Served: Adults and children
Services Provided:
• Medicaid waiver
services – home and community
• Supported
living/residential support
• Supported
employment
• Sheltered employment
• Day programs
• Respite
Indianapolis, IN 46219
(317) 375-2700
(317) 375-2719 (FAX)
Email: rita.davis@nobleofindiana.org
Website: www.nobleofindiana.org
Disabling Conditions Served: Developmental delays
Users Served: Children and adults with
developmental disabilities and their families
Services Provided:
• Children’s
services
• Summer day
camps
• School-to-work
program
• Supported
employment
• Work crews
• Noble
Industries
• Adult day
services
• Respite care
North American Riding for the
Handicapped Association, Inc. (NARHA)
(303) 452-1212
(800) 369-7433
Email: narha@narha.org
Website: www.narha.org
Disabling Conditions Served: Physical, psychological, and learning disabilities
Users Served:
Individuals or groups interested in participating in, beginning, or learning
about equine assisted activities
Services Provided:
• Promote the rehabilitation of individuals with disabilities
through equine assisted activities
• Help organizations/individuals establish new
therapeutic riding centers
• Support related medical research
• Train and certify therapeutic riding
instructors
• Provide affordable insurance
• Center accreditation and instructor
certification
•
Regional workshops for instructors, administrators, therapists, and volunteers
• A
conference and an annual meeting every fall (a four-day event) that includes
networking meetings, seminars, and demonstrations geared towards instructors,
therapists, and administrators
Resources Available:
• NARHA Membership Directory
• NARHA Strides quarterly magazine
• NARHA News
• The
There are approximately 700 NARHA member centers in
the
Local Riding Programs:
Agape Therapeutic
Riding Resources, Inc.
24950 Mt. Pleasant Rd.
(317) 773-7433
Email: info@agaperiding.org
Website: www.agaperiding.org
(317) 710-1470
Email: savitsky-j@indy.rr.com
Bright Hope Riders of the
(812) 466-2334
Email: revmansfield@aol.com
The
Children’s TherAplay Foundation, Inc.
(317) 872-4166
Email: info@childrenstheraplay.org
Website: www.childrenstheraplay.org
(219) 662-7654
Email: ChildrensTherapy@aol.com
Website: www.ctplus.addr.com
East
(765) 774-3702
Email: mapequestrian@aol.com
Program location:
Edelweiss Equine-Assisted Therapy
Center, Inc.
(317) 861-8617
Email: edelweisscenter@hotmail.com
EquiVenture Therapeutic Riding, Inc.
(765) 455-2408
Email: equiventure@aol.com
Website: www.equiventure.org
Exceptional
Equestrians Unlimited, Inc.
5308B
(219) 945-0726
Email: rondi_wightman@yahoo.com
Website: www.eeu2.org
Freedom Reins Therapeutic
1407
(812) 482-3874
Email: freedomreins@fullnet.com
Website: www.freedomreinscenter.org
Indianapolis Institute For Families, Inc.
(317) 271-3500
Email: dburks@indplsinstitute.com
Website: www.indplsinstitute.com
(317) 575-9645
Email: landa1985@aol.com
Website: www.lennonandassociates.com
54151 C.R. #33
(574) 825-5666
Email: info@lovewayinc.org
Website: www.lovewayinc.org
3805
(812) 593-0606
Email: dmanlief@aol.com
Morning
Dove Therapeutic Riding, Inc.
(317) 873-9636
Email: morningdovetrc@aol.com
Website: http://www.morningdovetrc.org
Mounted
Miracles Therapeutic SMWC Riding Program
Saint
Mary-of-the-Woods College
3301 St. Mary’s Rd.
(812) 535-5239
Email: cdurham@smwc.edu
Website: www.smwc.edu
People
and Animal Learning Services (PALS)
680 W. That Rd.
(812) 336-2798
(Voice and FAX)
Email: pals@indiana.edu
Website: www.palstherapy.org
Q.M.F.
Special Equestrians, LTD
(219) 663-5120
(260) 744-6145
Email: redcedar@awsusa.com
Website: www.awsredcedar.com
(574) 232-0853
Email: rolskb@netzero.net
Website: www.reinsoflife.org
602 W. CR 200 N.
(812) 649-8963
Email: tepperson@psci.net
Website: www.psci.net/stir-n-up-hope/
3747 S C.R. 1050 East
(317) 838-7002
Email: stridetosuccess@aol.com
Website: www.stridetosuccess.org
1000 Abington Pike
(765) 935-4291
Email: jledelman@msn.com
615
(765) 563-3797
Website: www.four-h.purdue.edu/chaps
Program location:
White Feather
Horses for Hope, Inc.
612
(812) 614-2766
Email: lashleykaren@yahoo.com
Breaking
New Ground
Purdue University
ABE Bldg.,
(800) 825-4264 or (765) 494-5013
www.breakingnewground.info
bng@ecn.purdue.edu