Family Caregiver Alliance

180 Montgomery St., Suite 1100

San Francisco, CA 94104

(415) 434-3388

(800) 445-8106

(415) 434-3508 (FAX)



Disabling Conditions Served: Cognitive disabilities (Alzheimer’s, stroke, brain injury, etc.) for ages 18+; other disabilities for ages 60+


Users Served: Family caregivers


Services Provided:

  Free caregiving information, publications, and advice

  Online support groups

  Research and policy development

  Education and training

  Assistance in locating caregiving resources


Resources Available:

National Center on Caregiving

Caregiving fact sheets, including some in Spanish and Chinese

Training manuals and research reports

Handbook for long-distance caregivers



Family Center on Technology and Disability

Academy for Educational Development

1825 Connecticut Ave. NW, 7th floor

Washington, DC 20009-5271

(202) 884-8068

(202) 884-8441 (FAX)




Disabling Conditions Served: All disabilities


Users Served: Organizations, programs, and individuals who work with children and youth with disabilities


Resources Available:

• Fully-searchable database containing reviews of books, articles, research and other materials of interest and utility to families of children with disabilities

• Monthly newsletter

• Presentation materials on the subject of assistive technologies

• Online conferences addressing topical issues and providing access to leading national experts


The Foundation Fighting Blindness

11435 Cronhill Dr.

Owings Mills, MD 21117-2220

(800) 683-5555

(800) 683-5551 (TDD)

(410) 363-2393 (FAX)




Disabling Conditions Served: Blindness


Users Served: People affected by retinal degenerative diseases, their families, and professionals


Services Provided:

Information and referral services

National conferences

Research support

• Local chapter support (see Website for listing)


Resources Available:

Retinal degenerative disease information packets

Newsletter - InFocus

• E-Newsletter - InFocus online


Chicago Area Office:

1580 S. Milwaukee Ave., Suite 606

Libertyville, IL  60048

(847) 680-0100

(847) 680-1050 (FAX)




Foundations for Persons with Disabilities

Ball Brothers Foundation

222 S. Mulberry

PO Box 1408

Muncie, IN 47305

(765) 741-5500

(765) 741-5518 (FAX)




Foundations for Nonprofit Organizations

The Indianapolis Foundation

615 N. Alabama St., Suite 119

Indianapolis, IN 46204

(317) 634-2423

(317) 684-0943 (FAX)



Lilly Endowment, Inc.

2801 N. Meridian St.

PO Box 88068

Indianapolis, IN 46208-0068

(317) 924-5471

(317) 926-4431 (FAX)



Community Foundations in Indiana



Four Rivers Resource Services

PO Box 249

Highway 59 S.

Linton, IN 47441

(812) 847-2231

(812) 847-8836 (FAX)




Disabling Conditions Served: All disabilities


Users Served:  Children and adults with disabilities


Services Provided:

To enable those with disabilities to live as independently as possible

• Group homes

• Early childhood education program


FRAXA Research Foundation

45 Pleasant St.

Newburyport, MA 01950

(978) 462-1866

(978) 463-9985 (FAX)




Disabling Conditions Served: Fragile X Syndrome


Users Served: Children and their families, educators, and medical professionals


Services Provided: 


Research support


Resources Available:



Information on symptoms, cause, testing, and treatment of Fragile X Syndrome

Fragile X listserv





Breaking New Ground
Purdue University
ABE Bldg., 225 S. University Street
West Lafayette, IN 47907-2093
(800) 825-4264 or (765) 494-5013